A Good Family History

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Introduction

Welcome to the A Good Family History website. This system is intended to allow a collaboration between family members and their health care providers to generate and document the best family history possible.

A good pedigree or family history, for the purposes of health care, is not one of royalty or where everyone is rich and famous but one where the most complete and accurate information is available. This will allow the best assessment of potential health risks for various family members.

This Web 2.0 application is designed to allow participation by as many members of the family as possible, and their health care providers, so the most accurate and specific information can be entered. For example, if someone in the family has had cancer, the risk to someone else in the family strongly depends on the type of cancer. Because of the way cancer spreads, family members frequently only know the site the cancer has spread to and not where it started. This person him or herself or his or her oncologist is the most likely to know the specific type of cancer. The person's spouse, siblings, or children are also more likely to know the type than cousins, nieces, nephews, etc. Since any or all of these people can potentially participate in storing the family history information the person most informed has the potential to contribute what they know. Each family member can enter his or her own information or information they may know about others. Since some families are not comfortable talking about such things, no one has to, it can just be directly entered by each individual.

Although the more communication within the family the better, having the information available to your relative's health care providers is what is needed to inform them of potential health concerns or reassure them that there are no concerns.

A Good Family History provides a central and shared place to store the information and a place that can be returned to and updated as new medical problems arise or as new information is found out. It also presents the information in a standardized format used by medical professionals.

So how do you get started? First you must register for an account. If you are going to enter information about your personal family you would

If, however, you are a health care provider and are planning to enter information for patients or clients, then If you are already registered, just login as and individual or provider and get busy.
Development of this site has been partially supported by a grant from the Agency for Healthcare Research and Quality .
Please choose whether you wish to access A Good Family History as a previously registered individual ready to review, continue and/or update your family history information, or as an individual new to the system interested in entering family medical history information for your own family, or as a previously registered health care provider needing to review and/or update family history information for your patients or clients, or as a health care provider new to the system interested in reviewing family history information entered by your patient or client or entering family history information for your patients or clients.